Saturday, April 07, 2007

A link and blathering

http://www.y-me.org/index.php Saw this on TV, have been cruising the site a bit. I got another few questions to ask the surgeon on Monday. Unless I get totally overwhelmed, I probably won't call them till after I see the surgeon, because I'll be clearer on what I need then, but being matched with another survivor sounds like an excellent idea. I wonder if they have any gimp survivors with chronic pain? That would be an utterly ideal match.

I'd read this in other places, but not quite as clearly. DCIS is not counted in cancer statistics. So I'm going to lose a boob without even being a statistic. It still beats having something worse, but I think they need to start tracking DCIS, even if it's as a separate category, because without it their statistics are misleading. I'll take it, though. It may not come with an addition to the statistics, but it comes with a pretty clear future. That's way more important to me.

Keeping a positive attitude with intermittent bursts of sobbing. This is going to be a long weekend. I may have pages of questions for the surgeon by the time I see her. The good news is that even though I'm on Medicaid, the surgeon is one of the best in town; she's been featured in 5280, a Denver magazine, as one of the top doctors. And she accepts Medicaid, which is a miracle.

Poor kiddo thought I was going in for surgery on Monday; I guess when i said that I was seeing the surgeon on Monday, she interpreted that as my going in for surgery. Thankfully, I'm not in that kind of hurry. We talked about it for a while after school and I think she's a little clearer on it now. When my grandmother had (much more severe) breast cancer and died, my mom was 14, and her father kept the kids out of the loop of what was happening. That still bothers Mom. I'm taking a page here and keeping my daughter informed on everything that is going on.

(Funny side note: I dropped the ball out of my trackball today and lost it. [I now have an optical mouse with no parts to lose.] She was looking for the silly ball and got her hips stuck between the bed and a dresser. She started talking about her big hips, and I cracked up. Told her they were still significantly smaller than mine or Hubby's. She announced "I'm full woman sized already!" She's 12. I know she's still going to grow, but she is right, as well.)

This is terrifying and exhausting. I wore out fiddling with my laptop this evening, and have had a couple bouts of sobbing since Hubby fell asleep -- soundless, so I wouldn't wake him. It's going to be a loooong weekend.

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